4th International Preceptorship in ALS in the NEMO Clinical Centers

PROGRAMMA SCIENTIFICO

26 September 2019

14.00 – 14.30 Registration
14.30 – 15.00 The NEMO Model
Valeria Sansone (Neurologist), Nemo Clinical Center Director, Milan
15.00 – 15.30 ALS diagnosis: clinical methods and patients and caregiver approach
Andrea Barp (Neurologist), Nemo Clinical Center, Milan
15.30 – 16.00 Treatment initiation and symptom management
Amelia Conte (Neurologist), Nemo Clinical Center, Rome

16.00 – 16.30 Coffee break

16.30 – 17.00 Treatment experience with Riluzole oral suspension: adherence, safety and quality of life
Francesca Gerardi (Biotechnologist) and Andrea Lizio (Biostatisti- cian), Nemo Clinical Center, Milan
17.00 – 17.30 Clinical trials involvement in ALS and the NEMO Clinical Research Center
Christian Lunetta (Neurologist), Nemo Clinical Center, Milan
17.30 – 18.30 Discussion

27 September 2019

09.00 – 09.15 NEMO Center Infrastructure tour
Christian Lunetta (Neurologist), Nemo Clinical Center, Milan
09.15 – 09.55 How to communicate with patients:
• Diagnosis
Christian Lunetta (Neurologist), Nemo Clinical Center, Milan
• Genetic results
Ugo Cavallari (Geneticist), Niguarda Hospital, Milan
09.55-10.15 Psychological tests in ALS
Lucia Greco (Psychologist) Nemo Clinical Center, Milan

10.15 – 10.45 Coffee break 

10.45 – 13.00 Multidisciplinary ALS patient care at NEMO center (attendees will be splitted into groups):
• Respiratory management (45’)
Elisa Falcier (Pneumologist), Nemo Clinical Center, Milan
Elisa De Mattia (Respiratory Therapist), Nemo Clinical Center, Milan
• Nutritional Impairment and Dysphagia (45’)
Daniela Ginocchio (Otolaryngologist), Nemo Clinical Center, Milan –  Maria Onida (Dietician), Niguarda Hospital, Milan – Michela Moretti (Speech Therapist), Nemo Clinical Center, Milan
• High Technology: improving Autonomy and Participation (45’)
Elena Carraro (Physiatrist), Nemo Clinical Center, Milan
Giordana Donvito (Occupational Therapist), Nemo Clinical Center, Milan
Marco Gualandris (Physiotherapist), Nemo Clinical Center, Milan
13.00 – 13.30 Discussion
13.30 Test CME

SCARICA PROGRAMMA

ISCRIZIONI CHIUSE – POSTI ESAURITI